It was probably an hour or so later they decided to take some of her lines out. They took the IV out of her hand. That made her so sad. But it was so much worse when they took the central line out of her neck. Poor thing was crying a hoarse little cry. Once they removed a couple other things they said I could hold her and try to calm her down. You could tell it hurt her a lot of be moved cause she was just screaming. Once I got her settled and calmed her down a bit we gave her a little more juice... which she threw up all over me not too long after.
Not long after moving to the floor and out of the PICU, we could see that she was swelling up a little again. We'll see what she looks like tomorrow. But even though her head is a lot more swollen now than when I took the above picture, I am very hopeful that her eyes won't get too bad and won't swell shut.
We keep a close eye on her heart rate since that is the first sign of when she is in pain. Its hard when she cries. But daddy has been great. He has been strong for both of us girls even though I know it hurts daddy to see his little girl in so much pain. He has been awesome.
Right now she is asleep after getting a dose of morphine and a couple ounces of formula. I hope she rests well tonight.
Thank you again to everyone for offering prayers in her behalf. Truly, thank you. It has been a great comfort to us.