When the doctor first called me to tell me the CT scan results, I was driving in the car with all the kids screaming in the back. So, I called him back later and we went through in more detail what is going on with Alayna's head. The Pediatrician said it was her sagittal suture that has fused.
This is from Wikipedia:
The sagittal suture is a dense, fibrous connective tissue joint between the two parietal bones of the skull. At birth, the bones of the skull do not meet. If certain bones of the skull grow too fast then "premature closure" of the sutures may occur. This can result in skull deformities. If the sagittal suture closes early the skull becomes long, narrow, and wedge-shaped, a condition called "scaphocephaly."
The sagittal suture is by the number 2.
The Pediatrician then told me a bit about the surgery. Traditionally, they go in and move the top of her skull in order to fix it. Its a pretty intense, invasive surgery. Over the last last few years however, there is a new procedure where they can make a couple small incisions and cut it apart... or something like that. There is less cutting, less of a scar, less blood loss, and recovery is suppose to be shorter. But I don't know which method she will need yet.
She will have to stay in the ICU for a night or two, then in the hospital as a regular patient for another four or five days. She will also have periodic check-ups in Salt Lake so I'm sure we will be traveling quite a bit this fall.
Anyway, the doc also said that some of his info might be a bit outdated so I will know a WHOLE lot more after we meet with the surgeon.
So now you know what I know.
We will be going down to Primary Children's in Salt Lake on Sept. 1st to meet with Dr. Siddiqi for a consolation, who is suppose to be one of the best surgeons for this procedure.
Anyway, I will update the info after our visit with the surgeon.
Thanks again for all your prayers and support.